My name is Sue Bates and my husband, Tom, and I live in Middletown, PA. We have two great kids, Emilee, 18, and Tommy, almost 15, with RTS. Tommy was born on March 28, 1984, a healthy 6 pounds 11 ounces. Even though I knew something was not quite right, nothing was even suggested. He was born with the broad thumbs and great toes, but they were not angulated. He did have a difficult time sucking. We were sent home thinking everything was fine and left to deal with his feeding issues ourselves. I nursed Tommy and he gained weight slowly. At 3 months, he started having severe diarrhea and the pediatrician recommended soy formula. It was thought he could be allergic to milk products. He did very well on the soy, so I discontinued nursing.
Tommy had several ear infections in the first two years. He sat up at 7 months and walked at 15 months. At 18 months we took him to Hershey Medical Center for an evaluation. They examined him and ran every test possible without deciding on a diagnosis. They had sent records to other doctors and still could not agree on any one syndrome. We decided a diagnosis was not that important since he was healthy and we took one day at a time. He was such a happy little boy and a joy to the entire family. He could make anyone smile!
When he was almost two, he started going to Easter Seals where he continued until age 4. Then he started in a pre-K class run by the Intermediate Unit, but in a classroom in our school district. He continued in the IU, in classrooms leased from area districts until age 7, when he returned to a class run by our district. He's remained in a self-contained learning support classrooms within our district.