Steven's story...

 

 
 


 
Steven at age 17

 

Steven was born on the 18th February 1986 to Donnie and Jenny Marais and me, his older sister Kirsten. He was diagnosed with Rubinstein Taybi Syndrome 2 days later. He was quite sickly and the doctors did not have much hope for him and said that he would probably not make it to the end of the week. However, he showed us all that he was a little fighter and proved them wrong.

When Steven was younger, he was a cheerful little boy, even when he was sick and in pain. He is very caring and lovable and as a child enjoyed (and demanded) constant attention! Whenever we went out to dinner, Steven entertained other people at the surrounding tables by singing into an imaginary microphone and just being his comical self.

Now that he is a teenager, he has settled down a lot and has matured into a pleasant young man. He is very sociable and often takes over the conversations when we have company. He has a good vocabulary and always surprises us with the big words he uses!

Steven makes an impression on everyone he meets. He is very determined in everything he does and will not give up until he achieves what he has set out to do. He has brought a tear to many an eye and I think he is here to remind people to be grateful for the
little things in life. I have always been proud of my brother and we love him just the way he is.