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Paolo is our second son, born in June 1970 with RTS problems. Nobody at the hospital informed us about his syndrome despite of the fact Paolo was smaller and weaker than the normal, having reflux feed problems and angulated thumbs.
After few weeks it was necessary to urgently recover him to the hospital because of a pneumonia. At that time we have been informed, in a dramatic way, about the Paolo RTS syndrome.......we were desperate! We started immediately to collect information about this syndrome without appreciable results ......29 years ago even medical doctors were not very well informed about this syndrome in our country. During a specialist visit we were informed that Paolo was destined to spend his life on a chair.......they said " he'll never walk "..... Fortunately for us, living in north of Italy, we found the way to start immediate physical therapy , early intervention and infant stimulation , spending a large part of our life time for him. Well, we are glad to say that Paolo not only walked without having problems.......he runs his cycle and he moves his body very well! Paolo is a wonderful "old boy", loving, friendly and he lives his life in a happy way. He likes a lot (too much) watching television and now also playing with his computer using interactive jokes; we are now starting teaching him how to type short sentences with his PC and it seems he is learning in fantastic way. No way to imagine that results 29 years ago!! He is very attracted by all the electronics gadgets ( may be like his father who is an amateur radio hi hi ! ) learning all these matters very easily. As like many RTS persons, also Paolo doesn't like loud sounds and crowd environment .
Actually Paolo attend to a special school for handicapped persons located few hundreds meters from our condo, in the Milano area (north of Italy ). What we noted in Paolo is a real, constant, continue, step by step improvement.......even now, at the age of 29, he is learning new things and improving his mind. This is wonderful ! We will be very glad to correspond with other families and we are very interested to meet families with adult RTS persons to exchange information and experiences . Best regards to all of you. Cesare and Laura Caprara
Cesare Alessandro Caprara Via Camelie 15 20095 Cusano Milanino (Milano) Italy E-mail address : cecaprar@tin.it
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