"Grant who's in the 6th grade, adores his sister whom we have all waited 10 years for."

My name is Karmin Goerger and I would like to share my story about our RTS daughter, Kendra. First I want to tell you my husband and I have an 11 year old son Grant who's in the 6th grade and adores his sister whom we have all waited 10 years for.

Kendra Rose was born Nov. 23, 1998 by a scheduled c-section.  She weighed 6 lbs. and was 18 inches long.  She was born with lots of black, thick hair, broad-flat thumbs, hearshaped big toes and an extra pinky toe on her right foot.  Her heart rate was 200 and her blood sugar was very low.  The local Doctor decided to get her to a place where they were better equipped for an emergency if something would go wrong, so Kendra was flown to Children's Hospital in Minneapolis, MN just 5 hours after birth, where she stayed for the next 11 days.  We live 3 hours west of the twin cities and after delivering c-section.  I was stuck in the hospital for the next 3 days, not being able to go with her.  My husband took off in the car and was there the whole time, by her side!  There, she was diagnosed with RTS within the first 2 hours of being there.  I finally got there Thanksgiving Day to see my precious daughter hooked up to tubes and wires and under billiruben lights.  The next day we met with the gene specialist and learned more about RTS.  She also had a heart murmor and two tubes to her left kidney. Kendra went thru lots of tests.  They checked her heart, kidneys, brain, blood and hearing.

Kendra had a hard time with the desire to eat.  Finally, after 11 days we could bring her home.  It was still a challenge to get her to eat, but finally two weeks and she was doing good.  We gave up on breast milk, even formula was not good as she spit-up alot!!  We went to soy formula and that seemed to be the best.  At 6 months old, she began to take zantac for the acid reflux problem, is still on this and is doing good.

The first 6 months of her life, she had 4 kidney infections which she was hospitalized for, which lead to surgery on Sept. 2nd for a uritral-reimplant.  She has been on preventive antibiotics since and hopefully in April, she will be off of them.

Kendra rolled over at 8 months, sat alone at 10 months and now scoots around the whole house in her walker. She doesn't crawl yet, but gets where she wants by rolling.  She patty-cakes, does "soooo-big" and says "dada".  Her big brother Grant and her are buddies.  The 10 years in-between seems to make them closer.

Kendra is now 14 months old and weighs 22 lbs. She is most all the time a very happy, smiley little sweetie.  She loves music, dancing and her big brother's attention.  We are very lucky to have Kendra in our family and we thank God every day for both of our precious children!!

It would be fun to hear from any of you with the same experiences!!

My e-mail address is: kgoerger@hotmail.com

 

Sincerely,

Karmin

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