Dr. Cathy A. Stevens has done studies with the USA parent group on various aspects of RTS. She had published a booklet "Rubinstein-Taybi Syndrome - A Book for Families" in collaboration with Dr. John Carey. It is available from her by writing to her address with attention: RTS Book.
Dr. Stevens continues to follow Rubinstein-Taybi Syndrome with more studies and will be updating "RTS - A Book for Families" as well as providing more journal articles from her studies. She welcomes contacts for help on diagnosis and general questions about RTS.