Medical

Argentina RTS Association

The Blue Book
The Blue Book is a compilation of articles from the 1998 International Family Conference that was held in Cincinnati, Ohio, July 10-13, 1998. It was edited by Jack H. Rubinstein, M.D., Nancy Lamphear, M.D. and Mark Shannon. It includes Anesthesia and Tethered Spinal Cord Information.

Brazil RTS Association

Canada RTS Association

France RTS Association

German RTS Association

Netherlands RTS Association

Spain RTS Association

UK RTS Association

United States RTS Association

An e-mailing list allows everyone on the subscriber list to share e-mail messages automatically. When a message is sent to the RTS E-Mailing List, all subscribers receive a copy. Responses can be made privately or to the group. Basically, it's a group discussion via e-mail. There are no fees to subscribe.

Please contact Janet Estes, RTS List Owner/Administrator at janetestes@telus.net

Michaela Mibach

Anesthesia
This information was brought to my attention by Diane Duval through the RTS Email List. The information was from http://www.healthwise.org/kbase/nord/nord461htm, which isn’t available at this time..

According to the medical literature, in some cases, individuals with Rubinstein-Taybi syndrome may have complications (e.g., respiratory distress and/or irregular heart beats [cardiac arrythmias]) associated with a certain muscle relaxant (succinlycholine) and certain anesthesia.  Any situations requiring the administration of anesthesia or succinlycholine (e.g., surgical procedures) should be closely monitored by skilled professionals (anesthesiologists).”

Megan Stewart

Height and Weight charts for children with RTS

Thanks to Laura Tucker for this Growth Chart Link:
CDC Growth Charts: United States