A site devoted to the families and people diagnosed with Rubinstein-Taybi Syndrome .

RTS

 

Lisa Wardlow and Dr. Rubinstein

Brazilian RTS Association

Canada RTS Association

France RTS Association

German RTS Association

Netherlands RTS Association

Spain RTS Association

UK RTS Association

United States
RTS Association

The Blue Book
The Blue Book is a compilation of articles from the 1998 International Family Conference that was held in Cincinnati, Ohio, July 10-13, 1998. It was edited by Jack H. Rubinstein, M.D., Nancy Lamphear, M.D. and Mark Shannon.  It includes Anesthesia and Tethered Spinal Cord Information.

Height and Weight charts for children with RTS

Thanks to Laura Tucker for this Growth Chart Link:
CDC Growth Charts: United States

Michaela Mibach

Anesthesia

This information was brought to my attention by Diane Duval through the RTS Email List.  The information is from http://www.healthwise.org/kbase/nord/nord461htm

According to the medical literature, in some cases, individuals with Rubinstein-Taybi syndrome may have complications (e.g., respiratory distress and/or irregular heart beats [cardiac arrythmias]) associated with a certain muscle relaxant (succinlycholine) and certain anesthesia.  Any situations requiring the administration of anesthesia or succinlycholine (e.g., surgical procedures) should be closely monitored by skilled professionals (anesthesiologists).”

Guestbook

Last Updated:
Thursday, January 05, 2006 

Other articles on the internet concerning Rubinstein-Taybi Syndrome

Megan Stolz

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