The Big Blue Book - 1998 International Family Conference

Disclaimer: This book was created after the 1998 Family Conference.  The articles are important to all of those involved with RTS.  This is online without permission from Dr. Rubinstein and the Cincinnatti Rubinstein-Taybi organization.  They would prefer that you call Dr. Rubinstein at  1-800-344-2462 ext. 4621 and request a copy of the book.  I would encourage everyone, especially those with a child who has RTS to call the above number and request a copy of this book.  I have been reassured by Mark Shannon that this book will be sent to anyone who requests it, regardless of country.
All the information from the book is not online (another reason to call and request the book).  Left out are articles which are copyrighted or are not appropriate for the web site (includes list of attendees).  All articles which are deemed “public domain” are included..
Diane Wardlow

Special Thanks (from the book)

The Conference Planning Committee would like to thank the following individuals and entities for their generous support.  Their participation was critical for the success of The 1998 International Family Conference on Rubinstein-Taybi Syndrome.

Ms. Susan Abrams
The Altrusa International of Cincinnati Service Group
The Baxter Family
Ms. Susanne Bookser
The Children’s Hospital Medical Center - Cincinnati
CHMC - Pet Visitation Program
The Cincinnati Recreation Commission
The Class of 2000 - University of Cincinnati, School of Nursing
Executive Trnasportation
Ms. Stacey Dowling
Ms. Yvonne B. Fryberger, M.A.
The Fruit-eze Corporation
The Gannon Family
the Garavente Family
Ms. Judi Gerding
Joan Earle Hahn, DNSc, RN
Ms. Sheila Hughes
Dr. Nancy Lanphear
Jean Lavigne
Mr. John Loechle
The Members of the Down Syndrome Association of Greater Cincinnati
The Members of Project SEARCH
Dr. Sonya Oppenheimer
The Pampered Chef
Ms. Roz Parrish, MSN
The Physicians, Staff, and Professional Disciplines involved in the Clinical Evaluations
The Presenters, Speakers, Moderators assembled for this conference
The Rubinstein-Taybi Parent Group - U.S.A.
Dr. Jack H. & Marlene Rubinstein
Mr. Mark Shannon
Ms. Dianne G. Sharp
The Special Friends Foundation
The Traveler’s Aid Society
The University Affiliated Cincinnati Center for Developmental Disorders (UACCDD)
UACCDD’s Staff and Volunteers

Proceedings Site

This information is in the public domain unless otherwise indicated.  Readers are encouraged to copy and share it, but please credit The Proceedings for the 1998 International Family Conference on Rubinstein-Taybi Syndrome.

UACCDD receives major support from the Hamilton County Mental Retardation Service Levy.  Additional funding sources include: United Way and Community Chest; Maternal and Child Health Bureau and the Administration on Developmental Disabilities of the Department of Health and Human Services; other county, state, and federal agencies; foundations; and individual contributions.
The 1998 International Family Conference on Rubinstein-Taybi Syndrome is very grateful for the generous support of The Special Friends Foundation

This document was added to the Rubinstein-Taybi web site in November 2000.

If any of the information found on this website does not adhere to copyright laws it is unintentional, please contact and it will be removed from the site.