Disclaimer: This book was created after the 1998 Family Conference.  The articles are important to all of those involved with RTS.  This is online without permission from Dr. Rubinstein and the Cincinnatti Rubinstein-Taybi organization.  They would prefer that you call Dr. Rubinstein at  1-800-344-2462 ext. 4621 and request a copy of the book.  I would encourage everyone, especially those with a child who has RTS to call the above number and request a copy of this book.  I have been reassured by Mark Shannon that this book will be sent to anyone who requests it, regardless of country.
All the information from the book is not online (another reason to call and request the book).  Left out are articles which are copyrighted or are not appropriate for the web site (includes list of attendees).  All articles which are deemed “public domain” are included..
Diane Wardlow

This is the questionaire that was used for the Behavioral Characteristic Study.

RUBINSTEIN-TAYBI SYNDROME QUESTIONAIRE

Child’s Age________________                                          Male__________  Female_________

Please indicate YES or NO to the following:

1. Difficulty relating to other people
2. Difficulty with emotional responses
3. Abnormal use of toys or other objects
4. Abnormal reaction (over or under reacts) to sounds
5. Resistance to change
6. Poor or intermittent eye contact
7. Preoccupation with smelling/tasting/feeling objects
8. Excessive response or lack of response to pain
9. Excessive fear
10. High activity level
11. Distractibility
12. Repetitive actions or motions, such as flapping, spinning, swirling, turning
13. Visual scrutiny
14. Behavioral outbursts; aggression
15. Difficulty sleeping
16. Was he/she ever diagnosed with:

Attention Deficit Disorder (ADD)
Attention Deficit/Hyperactivity Disorder
Obessive-compulsive Disorder (OCD)
Oppositional-defiant Disorder (ADD)

Were any medications/vitamins/minerals or any other supplements used?  If yes, please indicated.

If so, were they found to be effective?

Are there any treatment modalities being used (such as: OT, ST, PT, weighted vest, sensory integration, etc.)?

Comments:

Please complete nad return in the enclosed envelope at your earliest convenience.  Thank you for your cooperation, and for taking the time to complete this form.

Replication:
This information is in the public domain unless otherwise indicated.  Readers are encouraged to copy and share it, but please credit The Proceedings for the 1998 International Family Conference on Rubinstein-Taybi Syndrome.

Funding:
UACCDD receives major support from the Hamilton County Mental Retardation Service Levy.  Additional funding sources include: United Way and Community Chest; Maternal and Child Health Bureau and the Administration on Developmental Disabilities of the Department of Health and Human Services; other county, state, and federal agencies; foundations; and individual contributions.
The 1998 International Family Conference on Rubinstein-Taybi Syndrome is very grateful for the generous support of The Special Friends Foundation.

This document was added to the Rubinstein-Taybi web site in November 2000.

If any of the information found on this website does not adhere to copyright laws it is unintentional, please contact dwardlow@uswest.net and it will be removed from the site.

http://www.rubinstein-taybi.org