Disclaimer: This book was created after the 1998 Family Conference.  The articles are important to all of those involved with RTS.  This is online without permission from Dr. Rubinstein and the Cincinnatti Rubinstein-Taybi organization.  They would prefer that you call Dr. Rubinstein at  1-800-344-2462 ext. 4621 and request a copy of the book.  I would encourage everyone, especially those with a child who has RTS to call the above number and request a copy of this book.  I have been reassured by Mark Shannon that this book will be sent to anyone who requests it, regardless of country.
All the information from the book is not online (another reason to call and request the book).  Left out are articles which are copyrighted or are not appropriate for the web site (includes list of attendees).  All articles which are deemed “public domain” are included..
Diane Wardlow

RUBINSTEIN-TYABI SYNDROME
E-Mailing List

An “electronic” family-to-family discussion group devoted to sharing information and support concerning all aspects of Rubinstein-Taybi syndrome.

Note: An e-mailing list allows everyone on the subscriber list to share e-mail message automatically.

When a message is sent to the RTS E-Mailing List , all subscribers receive a copy.

Responses can be made privately or to the group.  Basically, it’s a group discussion via e-mail.

The RTS E-Mailing List currently includes 66 memebers from 10 different countries and strives to provide a caring, friendly and supportive forum for members to ask questions about Rubinstein-Taybi syndrome, disperse accurate up-to-date information, share their struggles and triumphs, brag about their kids’ accomplishments and support one another.

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There are no fees to subscribe to the RTS E-Mailing List.  For more details, please help yourself to an information sheet or e-mail Janet Estes at zestes@sd69.bc.ca

Replication:
This information is in the public domain unless otherwise indicated.  Readers are encouraged to copy and share it, but please credit The Proceedings for the 1998 International Family Conference on Rubinstein-Taybi Syndrome.

Funding:
UACCDD receives major support from the Hamilton County Mental Retardation Service Levy.  Additional funding sources include: United Way and Community Chest; Maternal and Child Health Bureau and the Administration on Developmental Disabilities of the Department of Health and Human Services; other county, state, and federal agencies; foundations; and individual contributions.
The 1998 International Family Conference on Rubinstein-Taybi Syndrome is very grateful for the generous support of The Special Friends Foundation.

This document was added to the Rubinstein-Taybi web site in November 2000.

If any of the information found on this website does not adhere to copyright laws it is unintentional, please contact dwardlow@uswest.net and it will be removed from the site.

http://www.rubinstein-taybi.org