Conference Presenters





	Disclaimer: This book was created after the 1998 Family Conference. The articles are important to all of those involved with RTS. This is online without permission from Dr. Rubinstein and the Cincinnatti Rubinstein-Taybi organization. They would prefer that you call Dr. Rubinstein at 1-800-344-2462 ext. 4621 and request a copy of the book. I would encourage everyone, especially those with a child who has RTS to call the above number and request a copy of this book. I have been reassured by Mark Shannon that this book will be sent to anyone who requests it, regardless of country. All the information from the book is not online (another reason to call and request the book). Left out are articles which are copyrighted or are not appropriate for the web site (includes list of attendees). All articles which are deemed “public domain” are included.. Diane Wardlow


	1998 International Family Conference on Rubinstein-Taybi Syndrome

Conference Presenters

Susan Abrams
Abrams Consulting
4436 Wyman Drive
Sacramento, CA 95821

Raouf S. Amin, M.D.
Department of Pulmonary Medicine
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Lorrie Baxter
RTS-USA
P.O. Box 146
Smith Center, KS 66967

Thomas S. Berger, M.D.
Department of Neurosurgery
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Ruthann Blough, Ph.D.
Cytogenic Laboratory
Division & Program in Human Genetics
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Loes Bosch-Soors d'Ancona
c/o Stichting R.T.S.
Loezekamp 26
8014 EP Zwolle
The Netherlands

Timothy Brei, M.D.
Developmental Pediatrics/Department of Pediatrics
James Whitcomb Riley Hospital
Indiana University Medical Center
702 Barnhill Drive
Indianapolis, IN 46202-5200

Kathleen Brinkman, M.S.N., R.N.
UACCDD Department of Nursing
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Miles J. Burke, M.D.
Suite 4F
10475 Montgomery Road
Cincinnati, OH 45242

Marie Callen, D.M.D.
Pediatric Dentistry
The Children's Dental Care Foundation
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Robin T. Cotton, M.D.
Otolaryngology & Maxillofacial Surgery
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Linda Custis-Allen, M.S., OTR/L
Occupational/Physical Therapy Department
UACCDD
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Peter St. J. Dignan, M.D.
3871 Dakota Avenue
Cincinnati, OH 45229

Tom Gannon, M.A.
Outreach Continuing Education Department
UACCDD
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Chris Garavante
The Special Friends Foundation
120 Shawnee Path
Millington, NJ 07946

Gregory A. Grabowski, M.D.
Division & Program in Human Genetics
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Joan Earle Hahn, DNSc, RN, CDDN, CS
UACCDD Department of Nursing
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Raoul Hennekam, M.D., Ph.D.
University of Amsterdam
Academic Medical Center
Institute of Anthropogenetics
Meibergdrief 15
1105 AZ Amsterdam
The Netherlands

Vera Hess-Snijder
c/o Stichting R.T.S.
8014 EP Zwolle
The Netherlands

Molly Holland, RD
Vermont Department of Health
108 Cherry Street
P.O. Box 70
Burlington, VT 05402

Carol Igoe, M.S.
Lighthouse Youth Services, Inc.
1527 Madison Rd.
Cincinnati, OH 45206

Nancy Lanphear, M.D.
UACCDD - Pediatrics and RTS Program
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Nancy Leslie, M.D.
Metabolic Services
Human Genetics Department
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Andrew Levitas, M.D.
Department of Psychiatry
University of Medicine and Dentistry of New Jersey
School of Osteopathic Medicine
40 East Laurel Road, Suite 200
Stratford, NJ 08084-1504

Charles Mehlman, M.D.
Orthopedic Surgery
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Eugene Minevich, M.D.
Urology Department
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Robert W. Miller, M.D.
EPS-7018
National Cancer Institute
Bethesda, MD   20892-7236

Mary Ann Mulcahey, Ph.D.
UACCDD Department of Psychology
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Dawn Nesbrig, M.S.W.
Adolescent Medicine
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Alan E. Oestreich, M.D.
Department of Radiology
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Sonya Oppenheimer, M.D.
Director of UACCDD
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Fred Petrij, M.D.
Department of Human Genetics
Sylvius Laboratory
University of Lieden
Wassenaarseweg 72
2333 AL Leiden
The Netherlands

Jack H. Rubinstein, M.D.
UACCDD - RTS Program
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Colin Rudolph, M.D.
Division of Gastroenterology and Nutrition
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Howard Saal, M.D.
Clinical Genetics Services
Human Genetics
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH   45229-3039

David C. Schwartz, M.D.
Department of Cardiology
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH   45229-3039

Mark Shannon
UACCDD - RTS Program
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH   45229-3039

Anita P. Sheth, M.D.
Department of Dermatology
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH   45229-3039

Tariq A. Siddiqi, M.D.
Obstetrics & Gynecology
Maternal Fetal Medicine
University of Cincinnati Medicine
231 Bethesda Ave.
Cincinnati, OH 45267

Cathy Stevens, M.D.
Department of Pediatrics
T.C. Thompson Children's Hospital
910 Blackford St.
Chattanooga, TN 37403

Theodore W. Striker, M.D.
Department of Anesthesia
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Hooshang Taybi, M.D.
1818 Wales Drive
Walnut Creek, CA 94595

Tina Veale, Ph.D., C.C.C.
Speech-Language Pathologist
C.C.S.H. Inc.
Timberview Office Park
9680 Cincinnati-Columbus Rd.
Cincinnati, OH 45241

V. E. Wood, M.D.
Orthopedic Surgery:Ā Hand Surgery
Loma Linda University - School of Medicine
11234 Anderson St.
Loma Linda, CA   92350

Kathleen A. Zink, M.S.N., R.N.
UACCDD Department of Nursing
The Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039


	Proceedings


	Rubinstein-Taybi.org Site


	Replication: This information is in the public domain unless otherwise indicated. Readers are encouraged to copy and share it, but please credit The Proceedings for the 1998 International Family Conference on Rubinstein-Taybi Syndrome.

Funding:
UACCDD receives major support from the Hamilton County Mental Retardation Service Levy. Additional funding sources include: United Way and Community Chest; Maternal and Child Health Bureau and the Administration on Developmental Disabilities of the Department of Health and Human Services; other county, state, and federal agencies; foundations; and individual contributions.
The 1998 International Family Conference on Rubinstein-Taybi Syndrome is very grateful for the generous support of The Special Friends Foundation.


	This document was added to the Rubinstein-Taybi web site in November 2000.

	If any of the information found on this website does not adhere to copyright laws it is unintentional, please contact dwardlow@uswest.net and it will be removed from the site.

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