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Rubinstein-Taybi Syndrome Family Service Website www.rubinsteintaybi.com - The Special Friends Foundation (www.rubinsteintaybi.com/whatisthespecia.html) has developed this site to be a valuable resource for families with children or adults with RTS.
NORD - Rubinstein Taybi Syndrome - Information on RTS from the National Organization for Rare Disorders www.rarediseases.org. The National Organization for
Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to
the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Internet Resources for Special Children (IRSC) www.irsc.org/index.htm - The IRSC web site is dedicated to communicating information relating to the needs of children with disABILITIES on a global basis.
disABILITY.gov - Access America www.disability.gov - US Government site bringing information on US Federal programs, services and resources to Americans with disabilities and their families. The Children and Youth page has a number of valuable links about education, resources for educators, and links of interest to kids and youth.
National Information Center for Children and Youth with Disabilities www.nichcy.org - NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22).
HalfthePlanet.com http://www.halftheplanet.com/ seeks to empower people in the disability community, including their families, friends, co-workers, and caregivers. We consider people living with a disability to be adaptive not physically challenged or handicapped. If you're seeking disability information and disability technology (such as universal design, accessible design, and assistive technology), disability research, services for people with disabilities, or assistive devices and products for disabled people, HalfthePlanet.com is the resource of choice.
Adaptive Environments http://www.adaptenv.org/default.asp promotes accessibility as well as universal design through education programs, technical assistance, training, consulting, publications and design advocacy. Its mission is to promote, facilitate, and advocate for international adoption of policies and designs that enable every individual, regardless of disability or age, to participate fully in all aspects of society.
American Association of People with Disabilities http://www.aapd-dc.org/ is a membership organization devoted to "leveraging the numbers of people with disabilities and their families and friends to access economic and other benefits to form an organization which will be a positive private-sector force to achieve the goal of full inclusion in American society".
The Arc of the United States http://thearc.org/ is a national organization of and for people with mental retardation and related disabilities and their families. It is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
Disability International Foundation http://www.teleport.com/~dif/index.htm is a nonprofit, educational foundation providing global awareness, consultation, networking, publications, and training in fostering progress for the inclusion of people with disabilities - children, youth and adults.
VSA Arts http://www.vsarts.org/ - Founded in 1974 by Jean Kennedy Smith as an affiliate of The John F. Kennedy Center for the Performing Arts, and led by President and CEO John D. Kemp, VSA arts is an International organization that creates learning opportunities through the arts for people with disabilities.
World Association of Persons with Disabilities http://www.wapd.org/ is the beacon of knowledge and refuge for the world's largest minority. WAPD advances the interests of persons with disabilities at national, state, local and home levels. Over fifteen years of "grassroots" planning and growth have catapulted the association to a world leadership position, advancing the soundness and empowerment of the so called "disabled" everywhere. WAPD links the disabled and supporters to current "leading edge" disability information via the various mediums of communication.
National Institute on Deafness and Other Communication Disorders http://www.nih.gov/nidcd/ - one of the Institutes that makes up the National Institutes of Health, NIDCD conducts and supports research and research training on hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function. Of particular interest is the page on Voice, Speech and Language http://www.nih.gov/nidcd/health/vsl.htm
National Institute of Child Health and Human Development http://www.nichd.nih.gov - part of the National Institutes of Health, NICHD conducts and supports research on the reproductive, neurobiologic, developmental, and behavioral processes that determine and maintain the health of children, adults, families and populations.
Listing and Links to all the Institutes and Center of the National Institutes of Health - http://www.nih.gov/lcd/
WorkSupport.com http://www.worksupport.com offers Information, resources, and research regarding the employment of people with disabilities.
Healthfinders http://www.healthfinder.gov - A free guide to general health information hosted by the U.S. Department of Health and Human Services.
The Gateway to Educational Materials http://www.thegateway.org is a site where teachers, parents, and students can access lessons and educational materials on any topic. Sponsored by the U.S. Department of Education, the Gateway makes finding materials on the Internet easy by connecting users to over 140 web sites.
Insure Kids Now http://www.insurekidsnow.gov - Learn how to get health insurance for your children through the Children's Health Insurance Program. CHIP's web page offers state-specific information on who is eligible and how to enroll to make sure children grow up healthy.
Social Security Administration http://www.ssa.gov/ - online information about Social Security, including disability information.
Federal Resources for Educational Excellence http://www.ed.gov/free/ - Agencies from across the Federal government joined forces to provide hundreds of education resources available on the web for teachers, students, or parents. Subjects range from an architectural tour of the National Gallery of Art's East Building to a mutual fund cost calculator from the Securities and Exchange Commission.
Disability Studies Web Ring
http://www.webring.org/cgi-bin/webring?ring=disstudies;list - this page lists the sites that are in this web ring, which was created to bring together websites that are related to the field of Disability Studies, which examines the history, perspectives, culture, literature, sociology and experience of people with disabilities. (If you have trouble with that link, try http://www.escape.ca/~ccds/webring.html
On A Roll http://www.onarollradio.com/ - Talk radio on life & disability. Broadcast on radio stations across the country and on the web.
The PeopleNet DisAbility DateNet http://idt.net/~mauro/gdsites.html - nice list of disability links.
Access Unlimited's DisAbility Link Barn
http://www.accessunlimited.com/links.html - another nice link list.
Amicus for Children, Inc. http://www.amicusforchildren.org educates, supports, and empowers the families of children. The mission of AFC is to unite caring professionals with families in need, to work in partnership in order to enhance the lives of the children who depend on us. AFC has a key interest in assisting, educating, and providing resources for the parents/guardians of special needs children so that they can be their children's "first and best advocate".
Children with Disabilities http://www.childrenwithdisabilities.ncjrs.org/ offers families, service providers, and other interested individuals information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities. The site was developed via the U.S. Department of Justice.
IDEA Practices http://www.ideapracties.org/ answers questions and provides information about the Individuals with Disabilities Education Act (IDEA).
EDLAW Inc. http://www.edlaw.net/frames.html provides information and technical assistance to parents and to attorneys representing children with disabilites.
State-by-State Listing of Parent Training and Information Centers http://www.npnd.org/PTIs.htm
"You Are Not Alone",
is a forthright and intelligent paper about those first moments when a parent learns his/her child hasa disability, and how to help themselves cope with that moment and embrace the future. http://www.npnd.org/notalone.htm
American Association of Mental Retardation http://www.aamr.org promotes global development and dissemination of progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities.
ADLS-on-the-Web http://www.acsw.com/adlsweb1.html. Adaptive Device Locator System, abbreviated ADLS, is a set of databases that help users obtain
information about specialized equipment and devices that can compensate for barriers imposed by limited physical capabilities. Elderly persons, people with disabilities, educators, and helping professionals can use
the Locator to identify assistive and adaptive devices that can increase independence, facilitate education, and improve quality of life.
EduHound http://www.eduhound.com/ is a resource database for educators, students and families. This links to the main page where you can choose from a number of categories, including special education.
LD Online - Learning Disabilities Information & Resources http://www.ldonline.org is the interactive guide to learning disabilities for parents, teachers and children.
Next Steps - The Guide to Future Planning http://www.peatc.org/NEXT_STEPS/Intro/brief.htm - a guide for students with disabilities, family members, educators or adult service providers to help develop and achieve goals toward a successful plan for an adult life. Developed by Virginia's Parent Educational Advocacy Training Center (PEATC).
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